Join us in the fight against Late Infantile Batten Disease.
We will always have hope for a cure and always have hope for Bridget.

Portraits by Thomas Balsamo

Portraits by Thomas Balsamo

Latest News

09.28.2014 Growing Cents of Style Oct. 4 & 5

09.28.2014 A Fifth Season, November 15

01.28.2014 Harmony 4 Hope- Honors World Rare Disease Day

01.28.2014 A Birthday, Broken Bone, Benefit and other Ballads…

10.21.2013 A Fifth Season, Nov. 16th

Mad Scientist

Bridget is a beautiful little girl who came into our lives on November 11, 2004. She had so much spirit from the earliest moments as she arrived 3 weeks early winning the affection of all, including her big brother Harrison. From the time she could walk, she’s loved to run, climb and go fast especially to music or the sound of the TV. She had spunk and sass and kept us on our toes. Bridget has been a love bug from the beginning, often known as the “Mad Hugger” for her tight squeezes.

For the first 3 years Bridget developed normally, reaching each milestone on schedule, with exception of her speech. We provided her with lots of attention and assistance in this area with the Early Intervention program and practice at home. She made slow, but steady progress and we celebrated each success. However, Bridget developed seizures in February, 2008 and we had to focus all our attention on keeping her seizures at bay. From that moment on, it has been a very windy road of doctors, tests and uncertainty. And now, we are faced with her diagnosis of Late Infantile Neuronal Ceroid Lipofuscinosis (LINCL) often referred to as Batten’s Disease. The prognosis is grim, but we pray everyday that modern medicine can find Bridget and other children like her a cure. We will always have hope for a cure and always have hope for Bridget.

Louis Vuitton Store Louis Vuitton Replica Luggage Bags Buy Louis Vuitton Bags Online Louis Vuitton Handbags Outlet Cheap Louis Vuitton Mens Shoes Louis Vuitton Store Locator Louis Vuitton Handbags Replica Where to Buy Louis Vuitton Handbags Cheap Louis Vuitton Handbags Replica Shoes for Women by Louis Vuitton Louis Vuitton Outlet Store Louis Vuitton Shoes Replica Buy Louis Vuitton Bags Online for Cheap Cheap Louis Vuitton Handbags from China Buy Louis Vuitton Bags On A Sale
Louis Vuitton Handbags Outlet Online Louis Vuitton Monogram Multicolore Leather Handbags Louis Vuitton Copenhagen Outlet Hermes Birkin 42cm Replica where can i buy hermes bags Hermes Wallets Offers Buy Louis Vuitton Neverfull MM Order Louis Vuitton Replica Bags Cheap Louis Vuitton Designer Shoes Louis Vuitton Womens Briefcase Louis Vuitton Handbags Replica from China Louis Vuitton High Quality Replica Handbag Wholesale Replica Louis Vuitton Bags Replica Louis Vuitton Romance Louis Vuitton Daniel MM Replica Louis Vuitton Travel Bag Replica Louis Vuitton New Zealand Outlet Hermes Birkin Handbag London Hermes Kelly Price List Hermes Outlet Store in San Diego California CA