Four special children are battling Late Infantile Batten disease in the Chicago land area. Noah (10), Bridget (9), Ethan (9), and Laine (8) all suffer from this horrific childhood disease where once they ran, laughed and played. Now they are wheelchair bound, tube fed and uncommunicative. At this time, Batten disease is always fatal- there is no treatment. There is no cure.
If only there were more hours in the day, or a fifth season in the year, we would have more time to find a cure for Batten disease. And we would have more time for each of these special children to experience a childhood before Batten disease ruthlessly rips it away. It is time to find a cure.
Hope 4 Bridget, Noah’s Hope and Cures Within Reach are hosting our 4th Annual Benefit to fund research on behalf of all four children, called “A Fifth Season…..Brightening the landscape of Batten Disease.”
A casual gala for a serious cause, which will be held on Saturday, November 15, 2014 at 5:30pm at the Cotillion Banquets in Palatine, Illinois.
The Fifth Season fundraiser will provide a big benefit experience with a relaxed atmosphere, featuring fantastic live music, special appearances/amazing emcees, impressive live and silent auction, dinner, dessert, and open bar.
Please join us for a remarkable evening of friendship, love and hope. We will always have hope for a cure….we will always have hope for Bridget!
Click here to order your tickets!
Posted by Sara Kennicott on 9.28.2014 – There are no comments for this post, be the first to join in!