Batten disease has overcome our children’s lives. It is their everyday- their normal. But for many, it is a completely unheard of disease and definitely NOT normal.
We are hosting our 5th Annual Benefit to fund research on behalf of our special children, called
“A Fifth Season…..Brightening the Landscape of Batten disease.”
The event will be held on Saturday, November 7th, 2015, 5:30pm at the
Cotillion Banquets in Palatine, Illinois. The Fifth Season fundraiser will provide a big benefit experience with a relaxed atmosphere, featuring music, an impressive live and silent auction, dinner, dessert, and open bar.
This year we will be featuring our Wine for Hope table, as well!
Click here for tickets
In the Chicago area, there are three children bravely fighting Batten disease. These children, Noah VanHoutan (age 11), Laine VanHoutan (age 9) and Bridget Kennicott (age 10), are fighting what is known as Late Infantile Batten disease, an extremely rare, degenerative, genetic disease. And there is one child, Ethan Gahlbeck (age 10) who has recently lost his battle against this horrific disease. He makes us all want to fight even harder for the future children who may face this fate.
If only there were more hours in the day, or a fifth season in the year, we would have more time to find a cure. And we would have more time for each of these special children to experience a childhood before Batten disease ruthlessly steals it away.
Please join us to make a difference in fighting Batten disease. Every childhood disease deserves a cure. We will always have HOPE!
Please come visit and shop the bi-annual children’s consignment sale on
Saturday, October 10th, 9AM- 4PM and Sunday, October 11th, 10AM- 2PM
A seasonal children’s consignment sale dedicated to selling the highest quality boutique and designer clothing (sizes newborn – size 16), shoes, accessories and baby gear.
Since 2006, GCOS mission has been to offer other mothers (as a consignor) a way to earn extra money for their families and to help shoppers find the children’s clothing they desire most at a fraction of the cost.
Bridget is one such consignor! If you purchase anything with a BRIGHT PINK TAG, she gets 100% of the proceeds. So plan on your winter shopping in October. Find great sales for your kids and help Bridget, too!
Canlan Sportsplex, formerly LB Field House
28156 W. Northpointe Parkway, Lake Barrington
World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.
The 8th annual World Rare Disease Day will be held on Saturday, February 28, 2015. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.
In our very own town, we will be kicking off the week with a Rare Disease Rock Concert at North Barrington School. Please join other families for dancing, snacks & fun this Friday night from 7- 9 PM in the NBS gym. Our very own COLTS (Community Outreach Lives Through Students) committee is sponsoring this event which is free of charge, but suggested donations will go to Hope 4 Bridget Foundation and other rare disease outlets. You don’t want to miss our featured band, Better With Bacon! Come and support rare disease!