Join us in the fight against Late Infantile Batten Disease.
We will always have hope for a cure and always have hope for Bridget.

Growing Cents of Style Oct. 4 & 5

Growing Cents of Style Sale coming THIS weekend! Come shop the sale and look for the HOT PINK tags! All purchases are 100% donated to the Bridget Kennicott Special Needs Trust, which helps pay for uncovered medical equipment and care for Bridget. Visit the Tree Time Christmas Classics building 22N102 Pepper Road Lake

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Barrington, IL \ One black North of Route 14, behind Pasquesi’s For more information, please visit the web site or email Jenny Welsh at www.growingcentsofstyle.com info@growingcentsofstyle.com www.growingcentsofstyle.com info@growingcentsofstyle.com

Posted by Sara Kennicott on 9.28.2014 – There are no comments for this post, be the first to join in!

A Fifth Season, November 15

Four special children are battling Late Infantile Batten disease in the Chicago land area. Noah (10), Bridget (9), Ethan (9), and Laine (8) all suffer from this horrific childhood disease where once they ran, laughed and played. Now they are wheelchair bound, tube fed and uncommunicative. At this time, Batten disease is always fatal- there is no treatment. There is no cure.

If only there were more hours in the day, or a fifth season in the year, we would have more time to find a cure for Batten disease. And we would have more time for each of these special children to experience a childhood before Batten disease ruthlessly rips it away. It is time to find a cure.

Hope 4 Bridget, Noah’s Hope and Cures Within Reach are hosting our 4th Annual Benefit to fund research on behalf of all four children, called “A Fifth Season…..Brightening the landscape of Batten Disease.”
A casual gala for a serious cause, which will be held on Saturday, November 15, 2014 at 5:30pm at the Cotillion Banquets in Palatine, Illinois.
The Fifth Season fundraiser will provide a big benefit experience with a relaxed atmosphere, featuring fantastic live music, special appearances/amazing emcees, impressive live and silent auction, dinner, dessert, and open bar.

Please join us for a remarkable evening of friendship, love and hope. We will always have hope for a cure….we will always have hope for Bridget!

Click here to order your tickets!
www.cureswithinreach.org/events/a-fifth-season

Posted by Sara Kennicott on 9.28.2014 – There are no comments for this post, be the first to join in!

Harmony 4 Hope- Honors World Rare Disease Day

My dear friend, Kerry Morgan Hughes, a Music Enthusiast & Founder of Harmony 4 Hope, dedicates heart and soul to using music as a vehicle to comfort, create community and contribute to Rare Disease Research, Awareness & Education. She was initially inspired by Bridget, then turned on by thousands like this sweet girl, to do something- to raise some noise for rare disease.

In recognition of the 7th Annual World Rare Disease Day, February 28, 2014, youth volunteers at Harmony 4 Hope are sending some love to children who bravely battle the uncertainty of a rare disease diagnosis. Your donated iDevices will be filled with favorites and special requests and delivered to these children who are joining our campaign daily. This is initiative is known as Play it Forward.

Our sweet Bridget is fortunate to BE one of these lucky recipients of the therapeutic and calming effects that this music will bring. So send in retired or unused iPods, Nanos, Shuffle or iTunes gift cards for the benefit of bringing music to these special children.

Please email Kerry for details:
kerry@harmony4hope.org
www.harmony4hope.org

Posted by Sara Kennicott on 1.28.2014 – There are no comments for this post, be the first to join in!
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