afifthseason.eventbrite.com

A Fifth Season- Brightening the Landscape of Batten Disease.
Please join us for a benefit to fund research on behalf of the five Chicago children who are bravely fighting Batten disease.
A casual gala for a serious cause, the event will be held on Saturday, April 2, 2011, at 5:00pm at the
Cotillion Banquets 360 Creekside Drive in Palatine, Illinois.

The five children are fighting Late Infantile Batten disease, an extremely rare, degenerative genetic disease. For the first few years, the kids developed normally, toddling, talking, and laughing like any other kids. Jasper (6) loved to explore… Bridget (6) always wanted to go-go-go… Ethan (6) received his diagnosis last July… Noah (6) loved playing with trains…and his sister Laine (5) adored playing dress up.

Unfortunately, everything changed quickly. Between the ages of 2 and 6, the children began to lose muscle coordination and experience seizures. Within a few years, they began losing their ability to speak, walk, and feed themselves as their little bodies slowly shut down. Eventually, children with Batten disease become blind, bedridden, and unable to communicate. At this time, Batten disease is terminal between the ages of 8 and 12.

If only there were more hours in the day, or a fifth season in the year, we would have more time to find a cure. And we would have more time for each of these special children to experience a childhood before Batten disease ruthlessly rips it away. It is time to find a cure. It is our turn to help.

The Fifth Season fundraiser gala will provide a big benefit experience with a relaxed atmosphere, featuring fantastic live music, special appearances, an impressive silent auction, and an extensive appetizer, dessert, and open bar.

Dress for the event is casual. The cause is absolutely critical. Please bring your friends, tell your neighbors, and spread the word about the Fifth Season event on Saturday, April 2, 2011. Together we can help find a cure.

Click this link to get to the invite page!
afifthseason.eventbrite.com

Growing Cents of Style will hold their bi-annul sale on Saturday, March 5, 9 AM- 2 PM and Sunday, March 6, 10 AM – 2 PM. The sale takes place at
500 N. Hough St. (Rte. 59) Barrington, IL
The Shops at Flint Creek
Located one block south of Rt. 14 on Hough St. Across from Tropical Smoothie
Cafe and Staples. Huge space – plenty of parking!!

Please consider donating clothes in Bridget’s name to the children’s clothing consignment sale this Spring. All items taggged with the “hot pink tag” will earn money for the Hope 4 Bridget Foundation. The mission of the Hope 4 Bridget Foundation is to provide funding for research and education in efforts to find a cure for LINCL (Late Infantile Neuronal Ceroid Lipofuscinosis), commonly referred to as Batten Disease. In addition, we will provide support to the children and families affected by Batten Disease.

Thanks for coming to do your children’s fall clothing shopping. For more information, please visit the web site or email Jenny Welsh at
www.growingcentsofstyle.com
info@growingcentsofstyle.com

An afternoon of sharing, learning & lots of fun!Bringing together Lybba, The R.A.R.E. Disease Network and the Hope 4 Bridget Foundation for Bridget’s birthday.
Saturday, November 13th, 12:00 noon, at The Kohl Children’s Museum. This event includes lunch, crafts and admission to the museum. Tickets are $15 per adult and $8 per child. Please submit payment to secure a reservation by Nov. 6th to Kerry Hughes, 1013 Technology Way, Libertyville, IL 60048. You can also contact Kerry with any questions at kikihughes847@comcast.net