Join us in the fight against Late Infantile Batten Disease.
We will always have hope for a cure and always have hope for Bridget.


Thank you for visiting Bridget’s website. We appreciate the many, many thoughts, prayers and overall support you’ve given our family. With humble hearts, thank you for your generosity, kindness and love. Please feel free to sign our guestbook as you visit the site. It’s

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a tribute to all of you who care so much. DSC_0086

There are 127 entries in the Guestbook, why not add your voice?
  • Congratulations on the new site!

    Alex Miles Younger

    September 2nd, 2009 at 3:13 pm

  • The new site looks great! As always your family is in my thoughts!

    Alexis Barath

    September 4th, 2009 at 2:54 pm

  • AND CARE WE DO! Thank you for letting us into your lives and sharing your journey with us, dear Kennicott family! Your website is easy to navigate and “pulls one right in!” WELL DONE! Keep the pictures coming; they tell “your story” well!

    What a milestone to celebrate on September 9, Sara! Hugs and more hugs for you! I can just feel your smile…..

    See you on a “field” soon, we hope….AND on 9/23 if all goes as planned. SUPER fundraising ideas to date! :-)

    May all this wonderful sunshine we have been having lift your spirits…and stay “on your shoulders” to make you happy! (John Denver…)

    Anne Lee

    September 4th, 2009 at 4:36 pm



    September 4th, 2009 at 6:02 pm

  • Great job on the site, it is perfect! Love you guys – Love Bridget


    September 4th, 2009 at 7:41 pm

  • I am Lori Koelblinger’s mom. She has kept me posted on Bridget and you. I want you to know that you are in my daily prayers and I have you and Bridget on our St. Charles Parish Prayer Network, asking for a miracle cure.
    Pat Blavat, Hartland, WI.

    Pat Blavat

    September 4th, 2009 at 9:03 pm

  • Dear Sara,
    What a beautiful site you have created to tell Bridget’s story. You and your family are in my thoughts and prayers each day.

    Katy Michels

    September 4th, 2009 at 9:16 pm

  • Great job on the website! I hope all the fundraising goes above and beyond! You are in my thoughts and prayers.

    Jennifer Olds

    September 4th, 2009 at 11:21 pm

  • WOW! The new website is beautiful!!!! I LOVE all of the pictures…what an amazing story those pictures tell. Her smile captures my heart.
    Thank you for sharing these precious moments with all of us.

    Cristi Barry

    September 4th, 2009 at 11:58 pm

  • Sara, Your website is wonderful. I had no idea all of these bumps and potholes and canyons were in your road. Thank you for sharing. I am sending you and your family all of my best thoughts and prayers and wishes and love.

    Alcie Nysse

    September 5th, 2009 at 10:28 am

  • LOVE the new website and all the new pictures!!! You all are such a beautiful family!!! Looking forard to the benefit at Rockit : ) Thoughts and prayers are with you always.

    Lizz Esbrook-Guidos

    September 5th, 2009 at 5:15 pm

  • Sara and Dave -
    The new website is awesome and I love all of the pictures!
    Love, Vicki


    September 5th, 2009 at 8:41 pm

  • Sara the website looks terrific! What beautiful pictures of the whole family!

    Jenny Welsh

    September 6th, 2009 at 8:28 am

  • Beautiful pictures of your family. I am thinking of you each day!

    Sarah Pavlik

    September 7th, 2009 at 7:29 am

  • I LOVE the new website! It is wonderful! You have a BEAUTIFUL family! You will all remain in my thoughts and prayers as you travel along this journey. I look forward to the upcoming fundraiser events!

    Lisa Riley

    September 7th, 2009 at 9:24 am

  • I love the new website, Sara and Dave! Thanks for taking the time to do this. It helps us keep updated on Bridget. We appreciate that! We think about you guys every single day and keep you close to our hearts. Always HOPEFUL for your sweet little Bridgey. Love you all…Kerry, Dave, Nate and Livvy

    Kiki Hughes

    September 7th, 2009 at 12:56 pm

  • Dear Dave, Sara, Harrison and Bridget – Hugs and love to all of you. Love the web site – hope school is going well for Harrison. Does he like 1st grade?? Bet he does! Know your family is in our thoughts and prayers. Kay and Don Griffith

    Kay Griffith

    September 7th, 2009 at 9:27 pm

  • Hey there Kennicotts! This new site looks fantastic and it was great to read the 8/25 journal update today too. Truly, you are all a model of strength and how we can all live our lives in each and every day- counting the blessings as they come. Hope the school year is a great one for everyone there. We continue to say prayers each day for you all. Lots of love, Bev, Ken and Caitlin Preuss

    Bev Preuss

    September 7th, 2009 at 10:46 pm

  • You are all amazing. What a beautiful family!

    Susan Lambert

    September 7th, 2009 at 10:46 pm

  • Bridget will always be my BABYCAKES—–! Granpa Bob

    Robert Jensen

    September 8th, 2009 at 5:52 am

  • On my favorites! Have been thinking about you guys.

    John Doyle

    September 8th, 2009 at 8:04 am

  • Hey – I found the perfect Halloween costumes for you guys…



    Then again, we all know that you don’t need the cape, costume or anything else…you both are great examples of strength, courage, and hope.



    September 8th, 2009 at 2:24 pm

  • I just got caught up on all the great family pictures! Thank you so much for sharing with us and touching each one of our lives. I am thinking and praying for you guys all the time.

    Kim McBride

    September 8th, 2009 at 8:17 pm

  • Love the new site! We continue to keep you all in our thoughts, and we’re looking forward to the fundraiser at Rockit on September 23rd!

    Katie Clark

    September 9th, 2009 at 10:17 am

  • David,

    You and Sara have created a wonderful web site to share with us. your family and your hopes. Are prayers are with you.

    We love what you do, and how you do it. Congratulations!

    Our best wishes,

    Steve and Linda Castle

    Stephen R Castle

    September 9th, 2009 at 2:12 pm

  • Dear Sara and Dave,
    Love the sight;I keep looking at all the beautiful pictures.

    Hugs and prayers-


    Larry and Ginny

    Ginny Wendt

    September 10th, 2009 at 3:50 pm

  • Sara & Dave, Love, Hope, Faith, and Prayers will always be the message our family is sending you. Bridget is a beautiful girl, and Harrison is an amazing big brother, we love you very much.
    The new website is Incredible…. Thanks for keeping us well informed.

    Melinda Doyle

    September 10th, 2009 at 6:46 pm

  • What beautiful new pictures! I got a great Bridget hug just the other day! I am hoping to go to Rockit….you are all constantly in my thoughts

    Erin Morley

    September 14th, 2009 at 9:32 pm

  • A bird doesn’t sing because it has an answer, it sings because it has a song.

    We can’t begin to know God’s plan. Stay strong and sing.

    My prayers are with you and your family always.

    Chris Mirabella

    September 15th, 2009 at 4:11 pm

  • The website is great!! What a wonderful testament to your beautiful Bridget and your wonderful family! You’ve chosen terrific pics to show love and joy; and the information is very helpful to tell the medical side of your story. Looking forward to meeting all the Kennicott clan!

    Diane Wood

    September 15th, 2009 at 7:09 pm

  • Great website!
    There is nothing more powerful than the power of prayer. My prayers and thoughts are always with you and the family during this difficult time.
    I do believe in miracles……

    Traci Buonincontro

    September 16th, 2009 at 11:01 am

  • Bridget is a beautiful little girl and I’m sure is a gift and treasure to you. My thoughts and prayers are with your family. I hope they find a cure soon for Batten Disease.

    Deanna Sava

    September 21st, 2009 at 12:20 pm

  • Your ability to share the joys and truths of Bridget and her illness is amazing.
    It is with such hope and love. Thank you for inspiring me to keep her in our prayers. She truly is a golden child.

    Holly Madden and family

    Holly Madden

    September 21st, 2009 at 6:48 pm

  • Sara,
    That picture of you and Bridget is priceless. It is beautiful – just like you are.
    Love to you, Dave,Harrison and Bridget.
    Penney and Gary

    Penney and Gary

    September 23rd, 2009 at 10:53 am

  • Sara,
    Thank you for creating and sharing this great website. The pictures are amazaing and your story is so well written. I pray for you in your journey ahead to stay strong. The love your family has for one another is evident.

    Alison Zapf

    Alison Zapf

    September 23rd, 2009 at 10:18 pm

  • Dave and family,

    Bridget is so precious and full of a contagious joy! We are saying a prayer for her and the entire family to get thru this. I am one that does believe in miracles because they have happened to me in my own life. So I pray for one or more to bless your lifes more so then the blessing you already have recieved with this wonderful girl.

    I will for sure be following this site and pray for a cure!

    Jim Chalil and family.

    Jim Chalil

    September 28th, 2009 at 11:31 pm

  • Sara,
    You are an amazing woman! You are the strongest person I know and I am proud to be your friend. The website is breath-taking. I really enjoyed all of your family pictures that you shared. Remember to take one day at a time through this journey. My positive thoughts are with you each and everyday!!

    Marla Kinross

    Marla Kinross

    September 29th, 2009 at 7:29 pm

  • Sara- the website is beautiful, as is your family and especially Bridget. Our families thoughts and prayers will always be with you.

    Jennifer Lekai

    October 1st, 2009 at 10:49 pm

  • Hi,

    Just checking in – wanting you to know that you are constantly in our thoughts and prayers.

    Much love,
    Hank and Molly

    Hank and Molly

    October 6th, 2009 at 10:56 am

  • Love the site. You are in my thoughts


    October 9th, 2009 at 12:35 pm

  • Hi Sara. Found your website! You didn’t tell me u had one.
    You have a beautiful family! I’m serious about helping out.
    I will talk to you soon!


    October 9th, 2009 at 4:58 pm

  • Your website is incredibly well-done! Sara, you have such a beautiful spirit and I look forward to working on fundraising to help Bridget. katy althoff

    Katy Althoff

    October 17th, 2009 at 10:57 am

  • Beautiful website. We connected with you through Jan and Vicki’s “unevent” invitation. We learned lots in the links and your sharing. We will keep your all in our prayers and thoughts. Our best to you all.

    Carol Ann Franklin

    October 20th, 2009 at 12:12 am

  • The previous note should have been from both Karen Paton and Carol Franklin.

    Carol Ann Franklin

    October 20th, 2009 at 12:13 am

  • What a beautiful as well as informative website for your precious Bridget. Love the pictures she is such a darling miss smiley!
    Just wanted to let you know that you are in my thoughts.

    Bettina Backstrom

    October 20th, 2009 at 9:16 am

  • Sara,
    What an amazing website! Paige “graduated” from reading and I wish she had the chance to work with you too!! My problems seem so small compared to yours!! What an amazing family you have and what an amazing woman and mom you are!! Enjoy your time with Mickey and friends!!
    My thoughts & prayers,
    Julie Bradley (Paige’s mom)

    p.s. I will try to ensure that Paige is reading aloud to someone at the Read-a-thon for all to hear!!

    Julie Bradley

    October 22nd, 2009 at 11:43 pm

  • Hi Dave,

    Someone at Kennicott sent me the link to your website and the story here has deeply touched me. You have lovely children and a beautiful wife. Bridget and Harrison both seem like amazing children and you are blessed to have them. As a mom of two and an old friend of yours, my heart goes out to you and your family. I will add my prayers to the long list offered here. By the way, I love the name of the website because there is always hope.

    Best Wishes, Michelle

    Michelle Lopez Fierer

    October 26th, 2009 at 11:19 am

  • I just joined your site and am honored to be a memebr, I will keep your little girl in my prayers and will pray for a cure for her and all of the children sfuuering from this illness.. God bless you family

    Parker McMahan III

    November 5th, 2009 at 3:44 am

  • Dear family, I would like you to know my deepest prayers are with you. My Grandaughter Zicheala was also diagnosed in Febuary 2008. Reading your story was like you were writing about us. Thank you for sharing your story. Darlene (NANA)

    Darlene stubbs

    November 5th, 2009 at 2:21 pm

  • Please check out

    Darlene stubbs

    November 5th, 2009 at 2:28 pm

  • Hello. My little brother Jake (4) has just been diagnosed with Late Infantile Batten Disease. I just want to say keep up the good work. You’ve got a great website which hilights the tragedy of Batten, but also everybody who is involved with this diseases hope that one day we may well be able to treat it. Good luck and hopefully together we can find a cure.

    Alex Chapman

    November 7th, 2009 at 3:08 pm

  • Sara and Dave,

    So sorry to hear of Bridget’s illness and Sara’s breast cancer. My prayers for you as you go through this difficult time. A cure will surely come some day.


    Carol Rechtoris

    November 8th, 2009 at 11:40 pm

  • What a nice thing to do, your newsletter! Hope you all have a good “day”.
    Love, Mom

    karen jensen

    November 10th, 2009 at 9:28 am

  • Happy Birthday Bridget!! I remember getting a phone call from your big brother Harrison telling me you were born! You couldn’t wait until your due date…you were too eager to start spreading your sunshine into all of our lives. I’ve been blessed to feel your sunshine and more blessed to get many,many of your great big hugs!! I love you Bridget… and pray that your 5th year is full of miracles. Dawnie

    Dawn Feit

    November 11th, 2009 at 7:27 am

  • Hope you are enjoying Disney and GKTW with Bridget! Happy 5th birthday! Princesses are amazing…hope you got to get a private showing with the Princesses and the “jumpy” Fairies. Love you all. Jen

    Jen VanHoutan

    November 11th, 2009 at 11:03 am

  • Hello Sara , We just got back from dinner with your parents. We were happy to hear from them as it had been a while since we last saw them in the desert and wondered if they were ok . We are just heartsick to hear what you and your family have been going through . Words cannot even begin to express how sad we are that your precious Bridget has such a devastating illness , and that you, yourself had to battle breast cancer as well . Tooooo much of a burden for one family . Soooo unfair . Looks like you have a wonderful support system though, and this website is incredible . Hope you had a wonderful time in Disneyworld !! Know that we are thinking of you and that our thoughts and prayers are with you . Big hug to Bridget and much love to all of you. I will also be placing a donation to Bridget’s cause . Again , so sorry to hear this news. Love , Ann Marie and Rich Zawadzki

    Ann Marie Zawadzki

    November 14th, 2009 at 12:17 am

  • Sara, thanks for sharing news about Bridget. Needless to say, she is in our thoughts and prayers, as are all of you.

    Pete Doyle and Anola Pickett

    November 15th, 2009 at 8:11 pm

  • Well its about time Grandpa BOB adds something to this guest book—I can only say that Sara Dave Harrison and Bridget have been climbing Mount Everest and their journey to the top has been a journey like no other family in the Jensen family can ever surpass—their expedition to the TOP is and will always be a journey we all should admire and pray we could do as well.

    Robert Jensen

    November 17th, 2009 at 8:16 pm

  • Sara, Dave, and Bridget
    Will be thinking of you all tomorrow and sending a little prayer that all goes well for Bridget.


    November 22nd, 2009 at 8:42 pm

  • Guys, I just found out about this from one of your school mom friends who works for a consulting client of mine. Our prayers and those of the entire Coll family are with you.

    I have told this lady that we will help in what ever way we can with the book-reading marathon that the schools are apparently preparing.

    Please hang in there and let us know if there is ANYTHING we can do!

    Denny & Cathy

    Denny & Cathy Coll

    November 23rd, 2009 at 3:54 pm

  • Sara and family,
    I am so sorry to hear the devestating road your family has taken the last couple of years. TeamHorne will pray for you “unceasingly” and please know that your old cheerleading buddy is thinking of you and your family as you travel through this heart wrenching journey.
    may God bless your family mightily!

    Shannon (Coll) Horne

    November 24th, 2009 at 7:58 am

  • Wishing you a loving and gracious Thanksgiving.
    You have all shown us the true meaning of love, grace and devotion.
    You are all in our thoughts always.
    Susan and Jay Maher

    Susan and Jay Maher

    November 25th, 2009 at 3:39 pm

  • Sara and family. I just learned about this site last night from dear friend Anne Tindall Johnson. Needless to say, my thoughts are with you. – Jeff Rucker

    Jeff Rucker

    December 3rd, 2009 at 9:43 am

  • Hi there,

    I was just at my computer and thought of you all. Just wanted you to know that i have been thinking of you all and I hope Bridget is doing much better now. I hope you had a nice Thanksgiving.


    Wendy Herb

    December 3rd, 2009 at 1:52 pm

  • Ken and I were so sorry to hear the ordeal that you are going through—-our thoughts and prays are with you and your family.
    We miss going fishing with your dad, Sara—-Love to all, Jeanne

    Jeanne Batz

    December 8th, 2009 at 9:53 am

  • Happy Holidays from All of the children and families at Sunny Hill Elem. We will all be taking up a change collection for Bridget and family. We all wish Bridget and family all the best and keep a big smile on and enjoy every minute of life. Sharing is caring and all the children and families at Sunny Hill Elem. will be keeping Bridget and family in their prayers.

    Angela Cook/ PTO President for Sunny Hill

    December 8th, 2009 at 8:59 pm

  • Hi Sara and David
    I just learned about your beautiful family and Bridget’s story from Pat Galus.
    I am such a believer in miracles and with such wonderful support and the collective power of prayer everything is possible.
    This is a wonderful website and I know you’ll reach many caring people here.
    You will all be in my thoughts and prayers
    Pam Weinert

    pam weinert

    December 22nd, 2009 at 8:48 am

  • Merry Christmas to Bridget, Harrison, Sara & Dave!!! I hope you have a wonderful day today and a beautiful holiday season. Jessica sends a special “Merry Christmas” right to Bridget — you are all in our thoughts and prayers.

    Amy & Mike Domke

    Amy Domke

    December 25th, 2009 at 12:37 pm

  • Sara and David, I just ‘heard’ your story from Katie’s Kennicott Christmas Letter.
    Please know your family is in my prayers. May the sun always shine in your hearts. Kjell(a long time friend of Red and Katie)


    December 27th, 2009 at 10:53 am

  • I just heard about your incredibly difficult journey. My heartfelt prayers are with you and your family.

    With hope and love,
    Jennie Lim

    Jennie Lim

    December 30th, 2009 at 10:32 am

  • We think about Bridget every day – what a precious and brave little girl. She’s incredibly lucky to have her superhero big brother to look after her. Way to go, Harrison!

    Much love to your family -

    Jen, Ryan and Leighton Freeman

    Jen Freeman

    December 30th, 2009 at 11:42 pm

  • As I was driving back and forth to Indiana during the break picking up Andritsch kids, I was on 294 and there was a large billboard that got my complete attention. It read, “Noah’s Hope. Help find a cure for Batten Disease!” I just wanted to let you know that the word is getting out there about this sad disease. I hope so many others see the sign and it starts to make a difference. We are excited to be coming to the Read-a-thon. For the wonderful teacher who helped Marielle and Patrick become the readers they are, this is just a small token we can give back to you and your family.
    You are always in our prayers,
    Mary Foersterling and family

    Mary Foersterling

    January 5th, 2010 at 8:20 pm

  • Hi, Sara -
    Just want you to know that, like so many others, Brad, my dad and my brother, Chris, and I are all thinking of you and your wonderful, beautiful family. We hold you all in our prayers. You show such strength, grace, determination and faith. I am looking forward to the Read – A – Thon. My children, Alex (13) and Jack (10) are learning of Bridget and your family and they have put her in their prayers as well. Take care and know how much you and your family are cared about.
    Stacy Sparesus

    Stacy Sparesus

    January 5th, 2010 at 10:17 pm

  • Sara – I just want you and your family to know you are in our thoughts and prayers. Because Bridget has been a part of our world it is a better place.
    Keep faith, hope, love and little Bridget in your heart.

    Stephanie Dunk McDonald – Lutherville, Maryland
    (Aunt Jackie’s daughter)

    Stephanie McDonald

    January 11th, 2010 at 8:25 am

  • Sara,

    I am a friend and classmate of your dad’s. My thoughts and prayers are with you and your family. Loras is actively involved in dance marathon and last year raised $87,000.00 for the Children’s Miracle Network. Part of the dynamic of that program is the opportunity our students have to become involved with some of the miracle families – often life changing experiences for our students. Recently I had an opportunity to share your story with the executive team (DM). One of them commented, “that’is why we are so committed to this.” I will continue to hold you in my thoughts and prayers. I put Bridget’s name in our chapel prayer book, so our students will be praying for her (and you) daily.
    John Walsh

    John Walsh

    January 12th, 2010 at 4:52 pm

  • Hi Sara,
    We haven’t met, but I am a friend of your sister-in-law Deb. She has shared what you are going through, and I just wanted you to know that I have been praying for you and your family. I pray and trust that God will give you the strength you need for each day, and will comfort you as only He can. I pray that Bridget will experience God’s peace as well and know that she is always held tightly in His arms.


    January 17th, 2010 at 2:13 pm

  • I am a friend of Bridget’s grandmother, Katie. I have been reading your website periodically to hear updates on Bridget. What a precious girl. It never fails to bring tears to my eyes to read about your positive outlook and your continued efforts to raise money and to help Bridget and others with this illness. Congrats on your fundraiser this month. Sounds like a tremendous success. Your family is in my thoughts and prayers.

    Lisa Oldson

    January 25th, 2010 at 4:40 pm

  • David, Bridget is in our thoughts and our prayers.

    Joseph Spina NMNA 88

    January 31st, 2010 at 2:41 pm

  • I hope bridget is doing better i love you always. Please send back! I will say more in the email. Wish upon a star hopefully it will come true like pinnochio. Love you. =)
    Car car or cousin Carter Strode

    Carter Strode

    February 1st, 2010 at 5:47 pm

  • Sara,

    I had no idea about your sweet little girl. My heart breaks for you and your family. I will be in continuos prayer for you…I prayed out loud this morning for Bridget, and Madeline asked if she would be okay. I ask that God give you strength, love, and encouragement, which surpasses all understanding. I pray you are all at peace. You are an inspriration to many!
    With love and comfort,

    Karen Matos

    February 16th, 2010 at 1:38 pm

  • Sara,
    We continue to pray for Bridget and your family. We wish that we could help but know that we send strength and love to you all.

    Thinking of you,
    Laura and Chad Chandlee and family


    February 20th, 2010 at 8:57 am

  • Dear Kennicot family,
    to go through everything that you are going through it must be more than anyone can imagine. stay strong, dont give up hope and faith. I posted your website to my facebook and hope that everyone I know will share it with everyone they know and somehow people will be able to help you and pray for your family.
    God bless you

    Renee Kapraun

    February 22nd, 2010 at 6:28 pm

  • Your story touched my heart when I saw you on the news today. I am lifting up Bridget & your family in prayer and hope. I have posted the link to your page on my facebook and will continue to spread the word in your efforts for fundraising. I can just picture her jumping up and running and playing again. God Bless you all and please know that there are many people praying for you, and miracles happen everyday.

    Sandy Wild

    February 23rd, 2010 at 11:40 am

  • Having been recently diagnosed with MS, I understand the difficulty of having a disease with no cure.
    It makes life very tough for all in the family.
    Finances are hard to keep up with, as well.

    I ask that everybody who hears Briget’s story to donate at least $5.

    If EVERYONE does this, it will add up to a huge amount of money and hope.

    We will pray for your daughter and your family.
    Best of luck.

    Mike Jones from Indiana

    February 23rd, 2010 at 1:37 pm

  • Your never waivering strength amazes me….you are in so often in my thoughts and prayers.

    Thinking of you Sarah and your lovely family.

    Kathy Featherstone

    February 23rd, 2010 at 9:41 pm

  • Your never waivering strength amazes me….you are in so often in my thoughts and prayers.

    Thinking of you Sara and your lovely family.

    Kathy Featherstone

    February 23rd, 2010 at 9:42 pm

  • It really amazes me when I read your e-mails. It shows how much “you” are loved by all your friends! Hang in there Sara, I know you will! Mom

    karen jensen

    February 24th, 2010 at 9:56 am

  • May God Bless you and you family.

    Rey Regalado

    February 24th, 2010 at 10:42 pm

  • Sara,
    I saw your story this week and I understand some of what you are going through. I have a special needs son (4yrs) who suffers from a rare chromosome disorder, seizures and a long list of other issues. I know how hard it is but I could see how much you and your family love your daughter and would do anything for her. So on behalf of my son we are going to donate a little something to help you. I will pray for Bridget and your family.

    Take care and god bless-

    Jennifer Tavernier

    February 25th, 2010 at 8:25 pm

  • David and Sara,

    Just wanted to tell you how beautiful your little Sarah is and let you know that you are also in all our prayers here at Batten Disease Research & Support Association. We just want you to know we are here to provide support and information if and when you need it, and can assist you with fundraising efforts etc. Please, call us, if you need some advice or information. We have a registered RN on staff (Nancy Carney), a family service director (Amy Lombardi), and myself (fundraising and publicity, in addition to our Executive Director, Lance Johnston, who is great at providing you with the most up to date information on research, and day-to-day issues as a parent of Batten disease himself.

    I would love to help you further your efforts in fundraising and promotion, and help the cause for the hundreds of other children affected by Batten Disease. If you would have time, could we schedule a phone call to talk in the next couple weeks?

    Thanks in advance.

    Adina Ryan
    Director of Development

    Adina Ryan

    March 1st, 2010 at 9:45 am

  • thinking of you all and your family today, and praying for each one of you. thank you for sharing your journey. hugs from alaska.

    anne demaree chadwick

    March 1st, 2010 at 12:54 pm

  • Hey Kennicotts!
    I am so thrilled to have the chance to see Bridget EVERY day! She is the dearest and so loved by all here at Woodland. You are a most amazing family…
    The Kontey’s are praying for you!

    nancy kontney

    March 2nd, 2010 at 4:12 pm

  • Sara and Dave -

    You and your family are in our thoughts and prayers. Thank you for sharing Bridget with all of us. Nancy comes home all the time and tells me how wonderful it is to have the opportunity to see Bridget every day. She is a special little Angel.

    Chris Kontney

    March 2nd, 2010 at 7:52 pm

  • Julie Ewing O’Brien shared your heart wrenching story. Bridget and your entire family are in my thoughts and prayers. I hope that treatment and a cure is found one day very soon. Stay strong.

    Michele Beier

    March 5th, 2010 at 12:45 pm

  • Sara,

    I just became aware of little Bridget’s story. What an incredible little girl. I am so sorry that you, your family and that beautiful child are dealing with such a difficult situation. Bryan and I are thinking of and praying for Bridget and your family.



    Josie (Svenson) Croll

    March 5th, 2010 at 1:21 pm

  • May God Bless you and your Beautiful Family as you walk this path that God has put you on. What a wonderful web site. I found this from the Jim Murphy Foundation Site. Thank you for allowing us to see into your lives. The pictures are wonderful. What a beautiful little girl. A true gift from God.
    Blessings to you and your family,

    Missy Kovacik

    April 13th, 2010 at 6:05 pm

  • We love you all so much. You are the best parents in the world. I think Harrison says it best. God gave you Bridget because God knows you would love her, NO MATTER WHAT. Hugs & Kisses !! Mom & Dad (Katie & Red–Grandma Katie & Grandpa Red)

    Grandma Katie & Grandpa Red

    April 27th, 2010 at 12:56 pm

  • Bridget and your family are in our prayers. If there is anything the Vance family can do to help, please feel free to call on us.

    Erik Vance

    May 11th, 2010 at 12:24 pm

  • I hope Bridget knows that much more than a bunny love her that she has an entire following on here that not only pray for each each day but pray and hope for a miracle to help end suffering for all children around the entire world.. I think as parents we know we would give our entire life to save the life our child/children. I continue to pray for little Bridget that she enjoy every day and only experience smiles from all around!

    Jim Chalil

    June 28th, 2010 at 10:30 pm

  • What a sweet girl she is.
    I hope for the best for her as well as my children.
    Srena and Mira have two different types of Batten Disases.
    Srena has the very rare for the US Virant Late Infintile Batten Disease and Mira has Infintile.
    My children need has much support as this sweet little angel.
    Please help my kids!
    I will pray for your little girl because I love these sweet kids.


    July 8th, 2010 at 3:15 pm

  • Kennicotts, we had a great time visiting with you this week. You are such inspirations to us all. We enjoyed our special time with your little angeland big brother. It was great to see how much music brings Bridget joy. Her smile at the Beach Boys playing was wonderful!
    God bless,
    Val, Mike and kids

    Valerie & Mike

    July 27th, 2010 at 9:06 pm

  • Dave and Sara, we just want to assure you that all of you are in our prayers. Hope the summr went well. Hugs all around.

    Debby and John Faust

    Debby Faust

    September 11th, 2010 at 12:15 pm

  • Hello David and Sara, You don’t know me, but I am here to offer support to you. I recently read a beautiful article about your family in the Kane County Magazine July 2010 issue, page 35. I want you to know that our stories are similar. You are not alone. Our daughter had Infantile NCL for almost 13 years. Then 3 years after she passed away, I too, was diagnosed with stage 2 breast cancer. If you’d ever like to talk, please let me know by the e-mail I provided. I’d be happy to talk. Bless you all and congratulations for all the fundraising you have done!
    Kathy Carlson

    Kathy Carlson

    October 25th, 2010 at 4:36 pm

  • Just wanted to say that I am thinking of you guys. I know last few weeks have been hectic with schedules. We will plan a nice, full day to hang out soon.

    Love you,


    October 26th, 2010 at 12:18 pm

  • Just wanted to wish the most beautiful girl at Barrington Early Learning Center a very Blessed Birthday….xoxoxox Ms. Joanne

    Joanne Owen

    November 11th, 2010 at 12:01 pm

  • I am so sorry that your family and beautiful daughter have this difficult road to travel. I hope that a cure is found soon! Thank you for your work to find the cure! Happy birthday to your sweet little girl! God bless your family!

    Kate Ipsen

    November 14th, 2010 at 10:04 pm

  • Hi Sara, Thinking of you and your family often. Have a restful holiday break!


    December 12th, 2010 at 7:33 pm

  • You are all in our prayers. This website is beautiful and inspiring.
    Jennifer & Marshall Macomber
    (Jim Ehrle is my father – Grandma Katie’s cousin)

    Jennifer & Marshall Macomber

    January 3rd, 2011 at 8:34 am

  • You did an amazing job on this website. I love all the photos. You have a beautiful family. My prayers are with Bridget and your family and the hope to find a cure. God Bless.

    Connie Castillo and family (Julia, John, and Tony)

    Connie Castillo

    January 11th, 2011 at 9:09 am

  • Lots of love and prayers! Terrie and Pete

    Terrie Stevens

    January 20th, 2011 at 3:38 pm

  • Such a touching way to bring awareness of Batten Disease and share your daughter’s story. You have a beautiful family.

    Becky DiBerardino

    January 27th, 2011 at 5:56 pm

  • Saw Bridgette at the Early Learning Center, didn’t know anything of her disease until I read this page. My prayers are with you. Very tragic, and hope all treatment goes well.

    Bob Jacobs

    April 27th, 2011 at 5:25 pm

  • Sara and Dave,

    Jan and I usually change news every spring around our birthdays. Keeping in touch with her reminds me always to remember you and Brigid and Harrison in my prayers. I love seeing the pictures on your website and seeing your reports on Brigid’s progress. God certainly knew what he was doing when he gave you His little angel!

    My love and prayers to you and your extended family,
    Cousin Jamie


    May 5th, 2011 at 9:38 am

  • Hi Kennicotts! Thinking about all of you on this beautiful spring day. I love looking at your pictures!…I miss you all so much! I continue to pray for your family and I know hundreds of others are too. I’m so glad school is almost out and you can relax and enjoy the lazy days of summer! I hope you won’t mind if I drop by this summer and give my little miss busy bee a big hug!! Be well and God bless all of you. Dawnie

    Dawn Feit

    May 17th, 2011 at 2:56 pm

  • Good site yours faithfully Susanna Raza


    June 16th, 2011 at 8:21 am

  • We wish your family nothing but the best. It was nice to briefly meet you on the way out of Greg and Maggie’s today! We are touched by your story. You are in our prayers and we certainly hope that the cure is found soon! Peace

    Les Lynott

    June 19th, 2011 at 3:27 am

  • Also, I don’t know that this will help one iota. But I was thinking about a company that I considered for employment years ago, Cyberonics. They have a medical device that is used to stimulate the Vagus Nerve for refractory epilepsy. I have no idea if their company would have done any research for Batten but it might be worth an inquiry.

    Les, Mary and Lorelei Lynott

    Les Lynott

    June 19th, 2011 at 3:35 am

  • Hey guys – glad we got to share a fun summer with you. Can’t believe it is over and school is here. You remain an inspiration to a lot of people…your strength, your faith, your “not gonna slow us down” mentality…gives a reason for people not to complain or bitch about much. Just wanted to say thanks.

    Lets have a good fall season. One day at a time.



    August 30th, 2011 at 12:55 pm

  • Hi David and Sara,

    I am mum to Matilda age nearly 5 who is also battling Batten’s Disease. Thank you for your wonderful website and insight into your world. I have started a blog to keep friends and family up to date with Tilda’s progress and hope it is ok to include a link to your website as part of it?

    All the very best to you and your lovely family

    Melbourne, Australia


    August 31st, 2011 at 9:17 pm

  • Sara and Dave,
    We saw your picture in The Illuminator Magazine. You both look so good. We know you had a fun and busy summer. And now headed into Fall and all the busy activities thst are planned. Our love and prayers to you both and to Harrison and Bridget.
    Penney and Gary

    Penney and Gary

    October 1st, 2011 at 9:00 am

  • Keep fighting Kennicott family.

    Chris Hempel

    December 26th, 2011 at 3:17 pm

  • Dear all Kennicotts,

    Just because we moved out of state does not mean we dont think of you. We think of you often and wondernhow Bridget is doing. Here is to a great yearnfor you and sending positive thoughtsmand love your way.

    Lots of warm hugs Iverson family

    Tone Iverson

    January 9th, 2012 at 7:08 pm

  • Dear Kennicott family,

    My thoughts are with you. I will work to spread the word about your Hope4Bridget.

    Lynn Hasselberger + Family

    Lynn Hasselberger

    January 10th, 2012 at 6:16 pm

  • Dear Bridget, My husband, Frank, and I are members of Assumption Parish. We have visited the lovely garden named for you. We have spoken to your loving grandmother. We want you and your Brother and Mom and Dad to know that you are in our prayers. We pray for your strength and peace and for all those who love you. Sincerely, Marie and Frank Whelan

    Marie D. Whelan

    September 11th, 2012 at 8:31 pm

  • Sara and family,

    Hi this is the first time reading about your beautiful daughter. You help my son everyday with such joy and dedication. You will be in my thoughts and prayers from now on, and I will stay posted so I can help in any way.

    Annette Audino

    Annette Audino

    January 21st, 2013 at 12:46 am

  • I came across your web site from another web site. I will be praying for your beautiful Bridget! I loved the photo gallery-you are truly blessed with such a happy family, in spite of everything you’ve been through & are currently going through. Your son, Harrison, sounds like such an amazing big brother with such a heart of gold. May God bless you all.

    Annmarie Mastro

    May 6th, 2013 at 1:24 am

  • Hi Kennicotts. I miss you guys. Hugs.


    Patrick McNulty

    May 23rd, 2014 at 9:28 am

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