Comments on: Guestbook

By: BURROW

BURROW — Sat, 04 Feb 2012 04:19:21 +0000

All our hopes are on you,

By: CARPER

CARPER — Sat, 04 Feb 2012 02:15:28 +0000

I think your site is great!,

By: Lynn Hasselberger

Lynn Hasselberger — Wed, 11 Jan 2012 00:16:10 +0000

Dear Kennicott family,

My thoughts are with you. I will work to spread the word about your Hope4Bridget.

Hugs,
Lynn Hasselberger + Family

By: Tone Iverson

Tone Iverson — Tue, 10 Jan 2012 01:08:36 +0000

Dear all Kennicotts,

Just because we moved out of state does not mean we dont think of you. We think of you often and wondernhow Bridget is doing. Here is to a great yearnfor you and sending positive thoughtsmand love your way.

Lots of warm hugs Iverson family

By: Chris Hempel

Chris Hempel — Mon, 26 Dec 2011 21:17:03 +0000

Keep fighting Kennicott family.

By: Penney and Gary

Penney and Gary — Sat, 01 Oct 2011 14:00:57 +0000

Sara and Dave,
We saw your picture in The Illuminator Magazine. You both look so good. We know you had a fun and busy summer. And now headed into Fall and all the busy activities thst are planned. Our love and prayers to you both and to Harrison and Bridget.
Penney and Gary

By: Laura

Laura — Thu, 01 Sep 2011 02:17:04 +0000

Hi David and Sara,

I am mum to Matilda age nearly 5 who is also battling Batten’s Disease. Thank you for your wonderful website and insight into your world. I have started a blog to keep friends and family up to date with Tilda’s progress and hope it is ok to include a link to your website as part of it?

All the very best to you and your lovely family

Laura
Melbourne, Australia

By: PJ

PJ — Tue, 30 Aug 2011 17:55:48 +0000

Hey guys – glad we got to share a fun summer with you. Can’t believe it is over and school is here. You remain an inspiration to a lot of people…your strength, your faith, your “not gonna slow us down” mentality…gives a reason for people not to complain or bitch about much. Just wanted to say thanks.

Lets have a good fall season. One day at a time.

L,
PJ

By: Les Lynott

Les Lynott — Sun, 19 Jun 2011 08:35:38 +0000

Also, I don’t know that this will help one iota. But I was thinking about a company that I considered for employment years ago, Cyberonics. They have a medical device that is used to stimulate the Vagus Nerve for refractory epilepsy. I have no idea if their company would have done any research for Batten but it might be worth an inquiry.

Les, Mary and Lorelei Lynott

By: Les Lynott

Les Lynott — Sun, 19 Jun 2011 08:27:08 +0000

We wish your family nothing but the best. It was nice to briefly meet you on the way out of Greg and Maggie’s today! We are touched by your story. You are in our prayers and we certainly hope that the cure is found soon! Peace

By: wonikkijamest6

wonikkijamest6 — Thu, 16 Jun 2011 13:21:47 +0000

Good site yours faithfully Susanna Raza

By: Dawn Feit

Dawn Feit — Tue, 17 May 2011 19:56:41 +0000

Hi Kennicotts! Thinking about all of you on this beautiful spring day. I love looking at your pictures!…I miss you all so much! I continue to pray for your family and I know hundreds of others are too. I’m so glad school is almost out and you can relax and enjoy the lazy days of summer! I hope you won’t mind if I drop by this summer and give my little miss busy bee a big hug!! Be well and God bless all of you. Dawnie

By: Jamie

Jamie — Thu, 05 May 2011 14:38:50 +0000

Sara and Dave,

Jan and I usually change news every spring around our birthdays. Keeping in touch with her reminds me always to remember you and Brigid and Harrison in my prayers. I love seeing the pictures on your website and seeing your reports on Brigid’s progress. God certainly knew what he was doing when he gave you His little angel!

My love and prayers to you and your extended family,
Cousin Jamie

By: Bob Jacobs

Bob Jacobs — Wed, 27 Apr 2011 22:25:18 +0000

Saw Bridgette at the Early Learning Center, didn’t know anything of her disease until I read this page. My prayers are with you. Very tragic, and hope all treatment goes well.

By: Becky DiBerardino

Becky DiBerardino — Thu, 27 Jan 2011 23:56:25 +0000

Such a touching way to bring awareness of Batten Disease and share your daughter’s story. You have a beautiful family.

By: Terrie Stevens

Terrie Stevens — Thu, 20 Jan 2011 21:38:27 +0000

Lots of love and prayers! Terrie and Pete

By: Connie Castillo

Connie Castillo — Tue, 11 Jan 2011 15:09:19 +0000

You did an amazing job on this website. I love all the photos. You have a beautiful family. My prayers are with Bridget and your family and the hope to find a cure. God Bless.

Connie Castillo and family (Julia, John, and Tony)

By: Jennifer & Marshall Macomber

Jennifer & Marshall Macomber — Mon, 03 Jan 2011 14:34:25 +0000

You are all in our prayers. This website is beautiful and inspiring.
Love,
Jennifer & Marshall Macomber
(Jim Ehrle is my father – Grandma Katie’s cousin)

By: Sarah

Sarah — Mon, 13 Dec 2010 01:33:27 +0000

Hi Sara, Thinking of you and your family often. Have a restful holiday break!

By: Kate Ipsen

Kate Ipsen — Mon, 15 Nov 2010 04:04:15 +0000

I am so sorry that your family and beautiful daughter have this difficult road to travel. I hope that a cure is found soon! Thank you for your work to find the cure! Happy birthday to your sweet little girl! God bless your family!

By: Joanne Owen

Joanne Owen — Thu, 11 Nov 2010 18:01:31 +0000

Just wanted to wish the most beautiful girl at Barrington Early Learning Center a very Blessed Birthday….xoxoxox Ms. Joanne

By: PJ

PJ — Tue, 26 Oct 2010 17:18:30 +0000

Just wanted to say that I am thinking of you guys. I know last few weeks have been hectic with schedules. We will plan a nice, full day to hang out soon.

Love you,
PJ

By: Kathy Carlson

Kathy Carlson — Mon, 25 Oct 2010 21:36:57 +0000

Hello David and Sara, You don’t know me, but I am here to offer support to you. I recently read a beautiful article about your family in the Kane County Magazine July 2010 issue, page 35. I want you to know that our stories are similar. You are not alone. Our daughter had Infantile NCL for almost 13 years. Then 3 years after she passed away, I too, was diagnosed with stage 2 breast cancer. If you’d ever like to talk, please let me know by the e-mail I provided. I’d be happy to talk. Bless you all and congratulations for all the fundraising you have done!
Kathy Carlson

By: Debby Faust

Debby Faust — Sat, 11 Sep 2010 17:15:05 +0000

Dave and Sara, we just want to assure you that all of you are in our prayers. Hope the summr went well. Hugs all around.

Debby and John Faust

By: Valerie & Mike

Valerie & Mike — Wed, 28 Jul 2010 02:06:06 +0000

Kennicotts, we had a great time visiting with you this week. You are such inspirations to us all. We enjoyed our special time with your little angeland big brother. It was great to see how much music brings Bridget joy. Her smile at the Beach Boys playing was wonderful!
God bless,
Val, Mike and kids

By: MayLyn

MayLyn — Thu, 08 Jul 2010 20:15:36 +0000

What a sweet girl she is.
I hope for the best for her as well as my children.
Srena and Mira have two different types of Batten Disases.
Srena has the very rare for the US Virant Late Infintile Batten Disease and Mira has Infintile.
My children need has much support as this sweet little angel.
Please help my kids!
I will pray for your little girl because I love these sweet kids.

By: Jim Chalil

Jim Chalil — Tue, 29 Jun 2010 03:30:40 +0000

I hope Bridget knows that much more than a bunny love her that she has an entire following on here that not only pray for each each day but pray and hope for a miracle to help end suffering for all children around the entire world.. I think as parents we know we would give our entire life to save the life our child/children. I continue to pray for little Bridget that she enjoy every day and only experience smiles from all around!

By: Erik Vance

Erik Vance — Tue, 11 May 2010 17:24:48 +0000

Bridget and your family are in our prayers. If there is anything the Vance family can do to help, please feel free to call on us.

By: Grandma Katie & Grandpa Red

Grandma Katie & Grandpa Red — Tue, 27 Apr 2010 17:56:51 +0000

We love you all so much. You are the best parents in the world. I think Harrison says it best. God gave you Bridget because God knows you would love her, NO MATTER WHAT. Hugs & Kisses !! Mom & Dad (Katie & Red–Grandma Katie & Grandpa Red)

By: Missy Kovacik

Missy Kovacik — Tue, 13 Apr 2010 23:05:20 +0000

May God Bless you and your Beautiful Family as you walk this path that God has put you on. What a wonderful web site. I found this from the Jim Murphy Foundation Site. Thank you for allowing us to see into your lives. The pictures are wonderful. What a beautiful little girl. A true gift from God.
Blessings to you and your family,
Missy

By: Josie (Svenson) Croll

Josie (Svenson) Croll — Fri, 05 Mar 2010 19:21:10 +0000

Sara,

I just became aware of little Bridget’s story. What an incredible little girl. I am so sorry that you, your family and that beautiful child are dealing with such a difficult situation. Bryan and I are thinking of and praying for Bridget and your family.

Sincerely,

Josie

By: Michele Beier

Michele Beier — Fri, 05 Mar 2010 18:45:24 +0000

Julie Ewing O’Brien shared your heart wrenching story. Bridget and your entire family are in my thoughts and prayers. I hope that treatment and a cure is found one day very soon. Stay strong.

By: Chris Kontney

Chris Kontney — Wed, 03 Mar 2010 01:52:50 +0000

Sara and Dave -

You and your family are in our thoughts and prayers. Thank you for sharing Bridget with all of us. Nancy comes home all the time and tells me how wonderful it is to have the opportunity to see Bridget every day. She is a special little Angel.

By: nancy kontney

nancy kontney — Tue, 02 Mar 2010 22:12:19 +0000

Hey Kennicotts!
I am so thrilled to have the chance to see Bridget EVERY day! She is the dearest and so loved by all here at Woodland. You are a most amazing family…
The Kontey’s are praying for you!

By: anne demaree chadwick

anne demaree chadwick — Mon, 01 Mar 2010 18:54:27 +0000

thinking of you all and your family today, and praying for each one of you. thank you for sharing your journey. hugs from alaska.

By: Adina Ryan

Adina Ryan — Mon, 01 Mar 2010 15:45:20 +0000

David and Sara,

Just wanted to tell you how beautiful your little Sarah is and let you know that you are also in all our prayers here at Batten Disease Research & Support Association. We just want you to know we are here to provide support and information if and when you need it, and can assist you with fundraising efforts etc. Please, call us, if you need some advice or information. We have a registered RN on staff (Nancy Carney), a family service director (Amy Lombardi), and myself (fundraising and publicity, in addition to our Executive Director, Lance Johnston, who is great at providing you with the most up to date information on research, and day-to-day issues as a parent of Batten disease himself.

I would love to help you further your efforts in fundraising and promotion, and help the cause for the hundreds of other children affected by Batten Disease. If you would have time, could we schedule a phone call to talk in the next couple weeks?

Thanks in advance.

Adina Ryan
Director of Development
BDSRA
http://www.bdsra.org
aryan@bdsra.org

By: Jennifer Tavernier

Jennifer Tavernier — Fri, 26 Feb 2010 02:25:37 +0000

Sara,
I saw your story this week and I understand some of what you are going through. I have a special needs son (4yrs) who suffers from a rare chromosome disorder, seizures and a long list of other issues. I know how hard it is but I could see how much you and your family love your daughter and would do anything for her. So on behalf of my son we are going to donate a little something to help you. I will pray for Bridget and your family.

Take care and god bless-

By: Rey Regalado

Rey Regalado — Thu, 25 Feb 2010 04:42:23 +0000

May God Bless you and you family.

By: karen jensen

karen jensen — Wed, 24 Feb 2010 15:56:49 +0000

It really amazes me when I read your e-mails. It shows how much “you” are loved by all your friends! Hang in there Sara, I know you will! Mom

By: Kathy Featherstone

Kathy Featherstone — Wed, 24 Feb 2010 03:42:30 +0000

Your never waivering strength amazes me….you are in so often in my thoughts and prayers.

Thinking of you Sara and your lovely family.

By: Kathy Featherstone

Kathy Featherstone — Wed, 24 Feb 2010 03:41:53 +0000

Your never waivering strength amazes me….you are in so often in my thoughts and prayers.

Thinking of you Sarah and your lovely family.

By: Mike Jones from Indiana

Mike Jones from Indiana — Tue, 23 Feb 2010 19:37:39 +0000

Having been recently diagnosed with MS, I understand the difficulty of having a disease with no cure.
It makes life very tough for all in the family.
Finances are hard to keep up with, as well.

I ask that everybody who hears Briget’s story to donate at least $5.

If EVERYONE does this, it will add up to a huge amount of money and hope.

We will pray for your daughter and your family.
Best of luck.

By: Sandy Wild

Sandy Wild — Tue, 23 Feb 2010 17:40:47 +0000

Your story touched my heart when I saw you on the news today. I am lifting up Bridget & your family in prayer and hope. I have posted the link to your page on my facebook and will continue to spread the word in your efforts for fundraising. I can just picture her jumping up and running and playing again. God Bless you all and please know that there are many people praying for you, and miracles happen everyday.

By: Renee Kapraun

Renee Kapraun — Tue, 23 Feb 2010 00:28:00 +0000

Dear Kennicot family,
to go through everything that you are going through it must be more than anyone can imagine. stay strong, dont give up hope and faith. I posted your website to my facebook and hope that everyone I know will share it with everyone they know and somehow people will be able to help you and pray for your family.
God bless you

By: Laura

Laura — Sat, 20 Feb 2010 14:57:23 +0000

Sara,
We continue to pray for Bridget and your family. We wish that we could help but know that we send strength and love to you all.

Thinking of you,
Laura and Chad Chandlee and family

By: Karen Matos

Karen Matos — Tue, 16 Feb 2010 19:38:46 +0000

Sara,

I had no idea about your sweet little girl. My heart breaks for you and your family. I will be in continuos prayer for you…I prayed out loud this morning for Bridget, and Madeline asked if she would be okay. I ask that God give you strength, love, and encouragement, which surpasses all understanding. I pray you are all at peace. You are an inspriration to many!
With love and comfort,
Karen

By: Carter Strode

Carter Strode — Mon, 01 Feb 2010 23:47:38 +0000

I hope bridget is doing better i love you always. Please send back! I will say more in the email. Wish upon a star hopefully it will come true like pinnochio. Love you. =)
Love,
Car car or cousin Carter Strode

By: Joseph Spina NMNA 88

Joseph Spina NMNA 88 — Sun, 31 Jan 2010 20:41:41 +0000

David, Bridget is in our thoughts and our prayers.

By: Lisa Oldson

Lisa Oldson — Mon, 25 Jan 2010 22:40:17 +0000

I am a friend of Bridget’s grandmother, Katie. I have been reading your website periodically to hear updates on Bridget. What a precious girl. It never fails to bring tears to my eyes to read about your positive outlook and your continued efforts to raise money and to help Bridget and others with this illness. Congrats on your fundraiser this month. Sounds like a tremendous success. Your family is in my thoughts and prayers.

By: Sara

Sara — Sun, 17 Jan 2010 20:13:17 +0000

Hi Sara,
We haven’t met, but I am a friend of your sister-in-law Deb. She has shared what you are going through, and I just wanted you to know that I have been praying for you and your family. I pray and trust that God will give you the strength you need for each day, and will comfort you as only He can. I pray that Bridget will experience God’s peace as well and know that she is always held tightly in His arms.

By: John Walsh

John Walsh — Tue, 12 Jan 2010 22:52:21 +0000

Sara,

I am a friend and classmate of your dad’s. My thoughts and prayers are with you and your family. Loras is actively involved in dance marathon and last year raised $87,000.00 for the Children’s Miracle Network. Part of the dynamic of that program is the opportunity our students have to become involved with some of the miracle families – often life changing experiences for our students. Recently I had an opportunity to share your story with the executive team (DM). One of them commented, “that’is why we are so committed to this.” I will continue to hold you in my thoughts and prayers. I put Bridget’s name in our chapel prayer book, so our students will be praying for her (and you) daily.
John Walsh

By: Stephanie McDonald

Stephanie McDonald — Mon, 11 Jan 2010 14:25:31 +0000

Sara – I just want you and your family to know you are in our thoughts and prayers. Because Bridget has been a part of our world it is a better place.
Keep faith, hope, love and little Bridget in your heart.
oxoxox

Stephanie Dunk McDonald – Lutherville, Maryland
(Aunt Jackie’s daughter)

By: Stacy Sparesus

Stacy Sparesus — Wed, 06 Jan 2010 04:17:54 +0000

Hi, Sara -
Just want you to know that, like so many others, Brad, my dad and my brother, Chris, and I are all thinking of you and your wonderful, beautiful family. We hold you all in our prayers. You show such strength, grace, determination and faith. I am looking forward to the Read – A – Thon. My children, Alex (13) and Jack (10) are learning of Bridget and your family and they have put her in their prayers as well. Take care and know how much you and your family are cared about.
Stacy Sparesus

By: Mary Foersterling

Mary Foersterling — Wed, 06 Jan 2010 02:20:00 +0000

As I was driving back and forth to Indiana during the break picking up Andritsch kids, I was on 294 and there was a large billboard that got my complete attention. It read, “Noah’s Hope. Help find a cure for Batten Disease!” I just wanted to let you know that the word is getting out there about this sad disease. I hope so many others see the sign and it starts to make a difference. We are excited to be coming to the Read-a-thon. For the wonderful teacher who helped Marielle and Patrick become the readers they are, this is just a small token we can give back to you and your family.
You are always in our prayers,
Mary Foersterling and family

By: Jen Freeman

Jen Freeman — Thu, 31 Dec 2009 05:42:08 +0000

We think about Bridget every day – what a precious and brave little girl. She’s incredibly lucky to have her superhero big brother to look after her. Way to go, Harrison!

Much love to your family -

Jen, Ryan and Leighton Freeman

By: Jennie Lim

Jennie Lim — Wed, 30 Dec 2009 16:32:45 +0000

I just heard about your incredibly difficult journey. My heartfelt prayers are with you and your family.

With hope and love,
Jennie Lim

By: kjell

kjell — Sun, 27 Dec 2009 16:53:52 +0000

Sara and David, I just ‘heard’ your story from Katie’s Kennicott Christmas Letter.
Please know your family is in my prayers. May the sun always shine in your hearts. Kjell(a long time friend of Red and Katie)

By: Amy Domke

Amy Domke — Fri, 25 Dec 2009 18:37:14 +0000

Merry Christmas to Bridget, Harrison, Sara & Dave!!! I hope you have a wonderful day today and a beautiful holiday season. Jessica sends a special “Merry Christmas” right to Bridget — you are all in our thoughts and prayers.

Amy & Mike Domke

By: pam weinert

pam weinert — Tue, 22 Dec 2009 14:48:59 +0000

Hi Sara and David
I just learned about your beautiful family and Bridget’s story from Pat Galus.
I am such a believer in miracles and with such wonderful support and the collective power of prayer everything is possible.
This is a wonderful website and I know you’ll reach many caring people here.
You will all be in my thoughts and prayers
Pam Weinert

By: Angela Cook/ PTO President for Sunny Hill

Angela Cook/ PTO President for Sunny Hill — Wed, 09 Dec 2009 02:59:11 +0000

Happy Holidays from All of the children and families at Sunny Hill Elem. We will all be taking up a change collection for Bridget and family. We all wish Bridget and family all the best and keep a big smile on and enjoy every minute of life. Sharing is caring and all the children and families at Sunny Hill Elem. will be keeping Bridget and family in their prayers.

By: Jeanne Batz

Jeanne Batz — Tue, 08 Dec 2009 15:53:37 +0000

Ken and I were so sorry to hear the ordeal that you are going through—-our thoughts and prays are with you and your family.
We miss going fishing with your dad, Sara—-Love to all, Jeanne

By: Wendy Herb

Wendy Herb — Thu, 03 Dec 2009 19:52:59 +0000

Hi there,

I was just at my computer and thought of you all. Just wanted you to know that i have been thinking of you all and I hope Bridget is doing much better now. I hope you had a nice Thanksgiving.

Wendy

By: Jeff Rucker

Jeff Rucker — Thu, 03 Dec 2009 15:43:55 +0000

Sara and family. I just learned about this site last night from dear friend Anne Tindall Johnson. Needless to say, my thoughts are with you. – Jeff Rucker

By: Susan and Jay Maher

Susan and Jay Maher — Wed, 25 Nov 2009 21:39:37 +0000

Wishing you a loving and gracious Thanksgiving.
You have all shown us the true meaning of love, grace and devotion.
You are all in our thoughts always.
Susan and Jay Maher

By: Shannon (Coll) Horne

Shannon (Coll) Horne — Tue, 24 Nov 2009 13:58:05 +0000

Sara and family,
I am so sorry to hear the devestating road your family has taken the last couple of years. TeamHorne will pray for you “unceasingly” and please know that your old cheerleading buddy is thinking of you and your family as you travel through this heart wrenching journey.
may God bless your family mightily!
Shannon

By: Denny & Cathy Coll

Denny & Cathy Coll — Mon, 23 Nov 2009 21:54:13 +0000

Guys, I just found out about this from one of your school mom friends who works for a consulting client of mine. Our prayers and those of the entire Coll family are with you.

I have told this lady that we will help in what ever way we can with the book-reading marathon that the schools are apparently preparing.

Please hang in there and let us know if there is ANYTHING we can do!

Denny & Cathy

By: Sharon

Sharon — Mon, 23 Nov 2009 02:42:31 +0000

Sara, Dave, and Bridget
Will be thinking of you all tomorrow and sending a little prayer that all goes well for Bridget.
Sharon

By: Robert Jensen

Robert Jensen — Wed, 18 Nov 2009 02:16:51 +0000

Well its about time Grandpa BOB adds something to this guest book—I can only say that Sara Dave Harrison and Bridget have been climbing Mount Everest and their journey to the top has been a journey like no other family in the Jensen family can ever surpass—their expedition to the TOP is and will always be a journey we all should admire and pray we could do as well.

By: Pete Doyle and Anola Pickett

Pete Doyle and Anola Pickett — Mon, 16 Nov 2009 02:11:39 +0000

Sara, thanks for sharing news about Bridget. Needless to say, she is in our thoughts and prayers, as are all of you.

By: Ann Marie Zawadzki

Ann Marie Zawadzki — Sat, 14 Nov 2009 06:17:07 +0000

Hello Sara , We just got back from dinner with your parents. We were happy to hear from them as it had been a while since we last saw them in the desert and wondered if they were ok . We are just heartsick to hear what you and your family have been going through . Words cannot even begin to express how sad we are that your precious Bridget has such a devastating illness , and that you, yourself had to battle breast cancer as well . Tooooo much of a burden for one family . Soooo unfair . Looks like you have a wonderful support system though, and this website is incredible . Hope you had a wonderful time in Disneyworld !! Know that we are thinking of you and that our thoughts and prayers are with you . Big hug to Bridget and much love to all of you. I will also be placing a donation to Bridget’s cause . Again , so sorry to hear this news. Love , Ann Marie and Rich Zawadzki

By: Jen VanHoutan

Jen VanHoutan — Wed, 11 Nov 2009 17:03:49 +0000

Hope you are enjoying Disney and GKTW with Bridget! Happy 5th birthday! Princesses are amazing…hope you got to get a private showing with the Princesses and the “jumpy” Fairies. Love you all. Jen

By: Dawn Feit

Dawn Feit — Wed, 11 Nov 2009 13:27:48 +0000

Happy Birthday Bridget!! I remember getting a phone call from your big brother Harrison telling me you were born! You couldn’t wait until your due date…you were too eager to start spreading your sunshine into all of our lives. I’ve been blessed to feel your sunshine and more blessed to get many,many of your great big hugs!! I love you Bridget… and pray that your 5th year is full of miracles. Dawnie

By: karen jensen

karen jensen — Tue, 10 Nov 2009 15:28:46 +0000

What a nice thing to do, your newsletter! Hope you all have a good “day”.
Love, Mom

By: Carol Rechtoris

Carol Rechtoris — Mon, 09 Nov 2009 05:40:35 +0000

Sara and Dave,

So sorry to hear of Bridget’s illness and Sara’s breast cancer. My prayers for you as you go through this difficult time. A cure will surely come some day.

Peace,
Carol

By: Alex Chapman

Alex Chapman — Sat, 07 Nov 2009 21:08:37 +0000

Hello. My little brother Jake (4) has just been diagnosed with Late Infantile Batten Disease. I just want to say keep up the good work. You’ve got a great website which hilights the tragedy of Batten, but also everybody who is involved with this diseases hope that one day we may well be able to treat it. Good luck and hopefully together we can find a cure.

By: Darlene stubbs

Darlene stubbs — Thu, 05 Nov 2009 20:28:55 +0000

Please check out Zichaelasmiracle.com

By: Darlene stubbs

Darlene stubbs — Thu, 05 Nov 2009 20:21:01 +0000

Dear family, I would like you to know my deepest prayers are with you. My Grandaughter Zicheala was also diagnosed in Febuary 2008. Reading your story was like you were writing about us. Thank you for sharing your story. Darlene (NANA)

By: Parker McMahan III

Parker McMahan III — Thu, 05 Nov 2009 09:44:57 +0000

I just joined your site and am honored to be a memebr, I will keep your little girl in my prayers and will pray for a cure for her and all of the children sfuuering from this illness.. God bless you family

By: Michelle Lopez Fierer

Michelle Lopez Fierer — Mon, 26 Oct 2009 16:19:04 +0000

Hi Dave,

Someone at Kennicott sent me the link to your website and the story here has deeply touched me. You have lovely children and a beautiful wife. Bridget and Harrison both seem like amazing children and you are blessed to have them. As a mom of two and an old friend of yours, my heart goes out to you and your family. I will add my prayers to the long list offered here. By the way, I love the name of the website because there is always hope.

Best Wishes, Michelle

By: Julie Bradley

Julie Bradley — Fri, 23 Oct 2009 04:43:09 +0000

Sara,
What an amazing website! Paige “graduated” from reading and I wish she had the chance to work with you too!! My problems seem so small compared to yours!! What an amazing family you have and what an amazing woman and mom you are!! Enjoy your time with Mickey and friends!!
My thoughts & prayers,
Julie Bradley (Paige’s mom)

p.s. I will try to ensure that Paige is reading aloud to someone at the Read-a-thon for all to hear!!

By: Bettina Backstrom

Bettina Backstrom — Tue, 20 Oct 2009 14:16:24 +0000

What a beautiful as well as informative website for your precious Bridget. Love the pictures she is such a darling miss smiley!
Just wanted to let you know that you are in my thoughts.

By: Carol Ann Franklin

Carol Ann Franklin — Tue, 20 Oct 2009 05:13:13 +0000

The previous note should have been from both Karen Paton and Carol Franklin.

By: Carol Ann Franklin

Carol Ann Franklin — Tue, 20 Oct 2009 05:12:14 +0000

Beautiful website. We connected with you through Jan and Vicki’s “unevent” invitation. We learned lots in the links and your sharing. We will keep your all in our prayers and thoughts. Our best to you all.

By: Katy Althoff

Katy Althoff — Sat, 17 Oct 2009 15:57:58 +0000

Your website is incredibly well-done! Sara, you have such a beautiful spirit and I look forward to working on fundraising to help Bridget. katy althoff

By: Toni

Toni — Fri, 09 Oct 2009 21:58:40 +0000

Hi Sara. Found your website! You didn’t tell me u had one.
You have a beautiful family! I’m serious about helping out.
I will talk to you soon!

By: Sean

Sean — Fri, 09 Oct 2009 17:35:44 +0000

Love the site. You are in my thoughts

By: Hank and Molly

Hank and Molly — Tue, 06 Oct 2009 15:56:10 +0000

Hi,

Just checking in – wanting you to know that you are constantly in our thoughts and prayers.

Much love,
Hank and Molly

By: Jennifer Lekai

Jennifer Lekai — Fri, 02 Oct 2009 03:49:36 +0000

Sara- the website is beautiful, as is your family and especially Bridget. Our families thoughts and prayers will always be with you.

By: Marla Kinross

Marla Kinross — Wed, 30 Sep 2009 00:29:35 +0000

Sara,
You are an amazing woman! You are the strongest person I know and I am proud to be your friend. The website is breath-taking. I really enjoyed all of your family pictures that you shared. Remember to take one day at a time through this journey. My positive thoughts are with you each and everyday!!

Marla Kinross

By: Jim Chalil

Jim Chalil — Tue, 29 Sep 2009 04:31:42 +0000

Dave and family,

Bridget is so precious and full of a contagious joy! We are saying a prayer for her and the entire family to get thru this. I am one that does believe in miracles because they have happened to me in my own life. So I pray for one or more to bless your lifes more so then the blessing you already have recieved with this wonderful girl.

I will for sure be following this site and pray for a cure!

Jim Chalil and family.

By: Alison Zapf

Alison Zapf — Thu, 24 Sep 2009 03:18:19 +0000

Sara,
Thank you for creating and sharing this great website. The pictures are amazaing and your story is so well written. I pray for you in your journey ahead to stay strong. The love your family has for one another is evident.

Alison Zapf

By: Penney and Gary

Penney and Gary — Wed, 23 Sep 2009 15:53:52 +0000

Sara,
That picture of you and Bridget is priceless. It is beautiful – just like you are.
Love to you, Dave,Harrison and Bridget.
Penney and Gary

By: Holly Madden

Holly Madden — Mon, 21 Sep 2009 23:48:11 +0000

Your ability to share the joys and truths of Bridget and her illness is amazing.
It is with such hope and love. Thank you for inspiring me to keep her in our prayers. She truly is a golden child.

Love,
Holly Madden and family

By: Deanna Sava

Deanna Sava — Mon, 21 Sep 2009 17:20:38 +0000

Bridget is a beautiful little girl and I’m sure is a gift and treasure to you. My thoughts and prayers are with your family. I hope they find a cure soon for Batten Disease.

By: Traci Buonincontro

Traci Buonincontro — Wed, 16 Sep 2009 16:01:43 +0000

Great website!
There is nothing more powerful than the power of prayer. My prayers and thoughts are always with you and the family during this difficult time.
I do believe in miracles……

By: Diane Wood

Diane Wood — Wed, 16 Sep 2009 00:09:37 +0000

The website is great!! What a wonderful testament to your beautiful Bridget and your wonderful family! You’ve chosen terrific pics to show love and joy; and the information is very helpful to tell the medical side of your story. Looking forward to meeting all the Kennicott clan!

By: Chris Mirabella

Chris Mirabella — Tue, 15 Sep 2009 21:11:30 +0000

A bird doesn’t sing because it has an answer, it sings because it has a song.

We can’t begin to know God’s plan. Stay strong and sing.

My prayers are with you and your family always.

By: Erin Morley

Erin Morley — Tue, 15 Sep 2009 02:32:34 +0000

What beautiful new pictures! I got a great Bridget hug just the other day! I am hoping to go to Rockit….you are all constantly in my thoughts

By: Melinda Doyle

Melinda Doyle — Thu, 10 Sep 2009 23:46:31 +0000

Sara & Dave, Love, Hope, Faith, and Prayers will always be the message our family is sending you. Bridget is a beautiful girl, and Harrison is an amazing big brother, we love you very much.
The new website is Incredible…. Thanks for keeping us well informed.
Hugs,
Melinda

By: Ginny Wendt

Ginny Wendt — Thu, 10 Sep 2009 20:50:32 +0000

Dear Sara and Dave,
Love the sight;I keep looking at all the beautiful pictures.

Hugs and prayers-

Love,

Larry and Ginny