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We will always have hope for a cure and always have hope for Bridget.

Disney and Today

DSC_0228Our Make a Wish Trip was truly unforgettable! We had a fantastic time with our family, all the wonderful people at the parks and hotels and especially with Bridget. We began with the Strodes (Aunt Julie, Uncle Steve, Carter and Katherine) and the Jensens (Uncle PJ, Aunt Kathleen, and Madeline) at Magic Kingdom on Monday. Nothing will ever compare to the special family time and fun we had there and with each other. We did it all: It’s A Small World, Pirates of the Carribean, Peter Pan, Haunted Mansion, and many, many more rides. The day culminated with meeting the princessess, fairies and the most wonderful Mickey and Minnie then the fireworks show at the castle. When we woke the next day, I told Dave that whatever we do the rest of the week will never compare to THAT day when we were all together celebrating Bridget and Disney.

On Tuesday the Strodes left and we took a trip to Hollywood Studios where Harrison became a Jedi in training, we met Buzz and Woody and saw an amazing light show. Wednesday was a trip into the jungle at Animal Kingdom complete with a bug show, safari, Nemo and Lion King shows and an awesome parade. Harrison and Madeline transformed into a tiger and fairy with their beautiful face paintings. Thursday was just the four of us and a chilly day at Universal and Islands of Adventure. This is where Bridget had her birthday present (a day late) with a meet and greet with Dora! Dora was wonderful playing on the ground and holding Bridgey then walking us down the main street. We were celebreties that day! Friday finished off with Sea World and a beautiful sunny day. It was lovely at the whale show, Polar Express exhibit, sharks, dolphins and petting the stingrays. On Saturady we packed up visited some friends of Dave’s and headed home. We had heavy hearts leaving, but were also looking forward to getting back to the comfort of our own beds (esp BRK).

Today, we prepare for at least a 3 day stay at Rush hospital. Knowing this day would come is no surprise to us. Bridget has been losing the ability to eat (as you’ve read in previous posts). Every meal was extremely stressful especially with the fact that she wasn’t getting her medications. Last week when we visited the neurologist he got us admitted to the ER for dehydration and came to find out that Bridget lost 7 pounds! They gave her a feeding tube placed through the nose and sent us home for the weekend. Tomorrow, Monday Nov. 23, she will have the G-tube placed directly through her belly for feeding. This is a HUGE relief. She is getting nourishment now and all her medication. Children can go many years with this situation and can thrive on it. So, no need for alarm. We feel like a weight has been lifted. When I first knew about this coming our way- several months ago, I was afraid and sad. But, now that it’s here, we are at peace knowing that it will only help her.

So we may not make it to Thanksgiving dinner, but we’re thankful Bridget will be getting her dinner! Say a little prayer tonight that all goes well! Thanks to everyone!!!!

Posted by Sara Kennicott on 11.22.2009

Here's what people are saying about Disney and Today

There are 4 comments.
  • We pray for Bridget tomorrow, that everything goes smoothly. And we continue to have HOPE. You are in our hearts, today. tomorrow and always. K

    Kiki Hughes

    November 22nd, 2009 at 9:19 pm

  • Wow Sara that is a relief. The next few days will be hard, but things will definetly be looking up! ILY. Mom

    karen jensen

    November 23rd, 2009 at 9:27 am

  • Thanks for sharing your Disney adventures. So wonderful to see! Praying for much peace for your family this Thanksgiving.

    Lori Ford

    November 25th, 2009 at 5:18 pm

  • Thinking of you this Thanksgiving and sending good thoughts your way! Katy Althoff

    Katy Althoff

    November 27th, 2009 at 12:58 am

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