Join us in the fight against Late Infantile Batten Disease.
We will always have hope for a cure and always have hope for Bridget.

Holding Fast

Bridget is stable as we head into our spring. Her new wheelchair has made a great addition to her repertoire of gadgets. It’s got some hot pink piping on the undercarriage, as well as her name embroidered in hot pink on the backrest. She has bling! Ironically, the brand name is Zippie, so if she is being pushed by Harrison, she’s “Holding Fast!”

In addition to the media coverage, we have a couple articles in this month’s Quintessential Barrington. Here is the link to the one they asked me to write. Sometimes, it’s so easy to tell her story.
www.qbarrington.com/quintessential.html

Posted by Sara Kennicott on 3.14.2010

Here's what people are saying about Holding Fast

There are 2 comments.
  • I love to read this and catch up, as if I were some stranger to this! As you know Sara I read it with great appreciation for you and yours! Mom

    karen jensen

    March 16th, 2010 at 5:16 pm

  • I try to keep tabs on this site to see how Bridget and Family are doing and say a prayer every time I leave the site and each night I go to bed for the entire Kennicott family for all the love and happiness they were able to and are still experiencing with their little one. I do pray for a cure and a miracle everyday for this illness and for her.

    Jim Chalil

    April 7th, 2010 at 4:21 pm

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